VIDEO: De ce bolnavii ajung să dea în judecată statul pentru dreptul la viaţă?
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Urmărește-ne pe Discover
Vorbim, la Adevărul Live, despre un subiect de multe ori evitat, fiind considerat o nişă: bolile rare, care, în ciuda preconcepţiilor, nu sunt chiar atât de rare.
Afectează aproximativ 1,3 milioane de români. Invitaţii Adevărul Live de astăzi - Radu Gănescu, preşedintele Coaliţiei Pacienţilor cu Afecţiuni Cronice din România, Dorica Dan, membru în boardul Eurordis (European Organisation for Rare Diseases) şi dr. Maria Puiu (prin Skype), preşedintele Consiliului Naţional pentru Planul Bolilor Rare, vorbesc despre nevoia urgentă de tratamente.
